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National Fragile X Foundation
Promotes public and professional awareness, research, and treatments of fragile X syndrome.
http://www.fragilex.org/

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NORD
National Organization for Rare Disorders. Offers resources on diseases and support organizations.
http://www.rarediseases.org/

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Office of Rare Diseases
Information on more than 6,000 rare diseases from the National Institutes of Health.
http://rarediseases.info.nih.gov/

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